PhD Scientific Days 2019

Budapest, April 25–26, 2019

Difficulties of medical communication at transition from active to palliative care of children with cancer – parental perspective

Földesi, Enikő

Enikő Földesi 1, Szilvia Zörgő 2, Judit Nyirő 2, György Péter 3, Péter Hauser 4, Katalin Hegedűs 2
1 Klebelsberg Institution Maintenance Centre, Budapest, Hungary
2 Institute of Behavioral Sciences, Semmelweis University, Budapest, Hungary
3 György Péter, Heim Pál Children's Hospital, Budapest, Hungary
4 Second Department of Pediatrics, Semmelweis University, Budapest, Hungary

Language of the presentation

Hungarian

Text of the abstract

Introduction
The effective medical communication is a determining factor during the introduction of palliative care in the field of pediatric oncology. The declaration of incurability and anticipated loss of a child is done during this session. Internationally this is an increasingly investigated area, researches focus on timing, participants of this session, determination of key communication skills, proper shared decision-making process, barriers of implementation of palliative care. Our research group previously published the physicians’ perspective of this session in Hungary. Analyzing parental aspects could open new insight into this process helping the proper management of this transition for health care professionals.

Aims
Our study is to overview the medical communication during the transition from active treatment to palliative care. This area was not mapped previously from the parental perspective in Hungary.
Method: Parents who lost their child in 1-5 years, treated with pediatric cancer in the main centers of Hungarian pediatric oncology care were contacted by the former treating physician by phone. Interviews were carried out by the same clinical psychologist. Demographic questionnaires and semi-structured interviews with 18 structured questions (circumstances of this discussion, parental experiences) are conducted with each participating parents. In the verbatim transcribed records content analysis will be carried out by Atlas t.i 6.0 software.

Results
Up to now 16 interviews were recorded. All participant were cooperative, and happy to share their experiences. Limits of inclusion of participants were their distance from fixed place of interviews, the change of the contact data of the parents and the lack of cooperation of the treating physicians.

Conclusion
We could conclude, that this investigating model is a proper and reliable method to overview the medical communication from parental perspective during implementation of palliative care.

Data of the presenter

Doctoral Schools: Mental Health Sciences and Pathological Sciences
Programs: Mental Health Sciences and Experimental Oncology
Supervisors: Katalin Hegedűs, Péter Hauser
E-mail address: foldesie@gmail.com